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Nederlandse BrughoektumorForum • Toon onderwerp - Botoxbehandeling bij facialisspasmen

Botoxbehandeling bij facialisspasmen

De titel van dit forum zegt het al…..b.v. aangezichtsverlamming, doofheid, evenwichtsklachten en andere klachten

Botoxbehandeling bij facialisspasmen

Berichtdoor puck42 » vr 08 aug 2014, 15:52

Hallo,

Ik heb last van gezichtsspasmen, inmiddels ruim 20 "aanvallen" per dag. Volgende week heb ik het eerste gesprek met de specialist die dit behandelt met botox. Iemand hier bekent mee?

Tevens was mijn bht wederom minimaal gegroeid, men gooit dit nu als zijnde nog uitzetting van de tumor na bestraling. Deze heb ik in okt/nov '13 gehad. Dus dat zou alsnog vanzelf moeten krimpen. Ik geloof er niet in....


Groetjes Petra
Geopereerd april 2011 in Maastricht, links doof, evenwicht niet hersteld.
puck42
 
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Re: Botoxbehandeling bij facialisspasmen

Berichtdoor Danny » za 09 aug 2014, 08:56

HI Petra, uitonderzoek is geleken dat de tumor nog 2 jaar kan reageren op de bestraling en kan toenemen in volume. Zie ook http://www.bhtinformatie.nl/index.php/1 ... ghoektumor.
Dit zou dus bij jou ook het geval kunnen zijn dus nog niet de moed opgeven hoor!!! Veel sterkte, groeten Danny.
Oktober 2010 3cm operatief LUMC verwijderd, goed hersteld, rechts doof. April 2014 BAHA.
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Danny
 
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Re: Botoxbehandeling bij facialisspasmen

Berichtdoor Anke » za 09 aug 2014, 09:31

Botox krijg ik al weer een paar jaar (1 x in de 14 weken ongeveer) en dat helpt goed tegen de verkramping.
Voelt daarna weer ontspannen aan.
Zeker het proberen waard, Petra!
Voor mijn verhaal
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Anke
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